Today In History, 1990: President George H.W. Bush Signs the Ryan White CARE Act

Jim Burroway

August 18th, 2016

American Foundation for AIDS Research Program Officer Terry Beirn urging President Bush to support the Ryan White CARE Act.

American Foundation for AIDS Research Program Officer Terry Beirn urging President Bush to support the Ryan White CARE Act.

Since the earliest days of the AIDS epidemic, the nation’s response to the deadly disease was chronically slow and woefully underfunded. Much of the resistance to increased funding stemmed from open hostility to the disease’s two main risk groups; gay men and intravenous drug users. If there was any sympathy toward the disease, it was reserved almost exclusively for hemophiliacs who were infected by tainted blood products. They were deemed the only “innocent” victims of the disease, and Indiana teenager Ryan White was their most visible symbol. By 1990, the first of the most meaningful treatments, AZT, was available (Mar 19), but its $10,000 per year price tag (over $21,000 in today’s dollars) made it beyond the reach of all but the wealthiest patients.

In hearings held in early 1990, the House Budget Committee heard testimony in Los Angeles and San Francisco about the challenges in providing care. Mervyn Silverman of the American Foundation for AIDS Research (amfAR) warned that up to one million HIV-positive Americans were at risk of becoming ill with full-blown AIDS. Others declared that it was finally time to treat AIDS like any other natural disaster. By the spring, members of the House and Senate were gearing up to prepare major legislation to help pay for treatment. The legislation would provide block grants to states to provide testing, counseling and early low-cost treatment to those with HIV and who had no other means to pay for it. It also would provide additional finds for urban centers where health care systems were already strained by the epidemic, and provide medical care for expectant mothers with HIV.

Ryan White and his mother, Jeanne, in 1985.

Ryan White and his mother, Jeanne, in 1985.

Different versions of the legislation passed the House and Senate, but they were far apart in the specifics. When the final version was hammered out in conference, it went back to both chambers for approval. During the House debate, the Bush White House signaled its opposition to the bill, saying “The bill’s narrow approach, dealing with a specific disease, sets a dangerous precedent, inviting treatment of other diseases through similar arrangements.” By then, the bill had been named the Ryan White CARE Act after the teen who died the previous April. His mother, Jeanne White, testified on Capital Hill in support of the bill.

North Carolina bigot Jesse Helms led the opposition in the Senate, but his filibuster threat was thwarted when the bill arrived on the Senate floor with sixty-six co-sponsors, more than enough to end debate. Both houses voted overwhelmingly for the bill’s final passage in voice votes between July 31 and August 4. Sensing that any White House veto would be quickly overridden, President Bush quietly signed it on Saturday, August 18.

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